• arielaaviva

Ehlers-Danlos Society Conference in Baltimore


(written in August)


Wow, what a week! It's been a whirlwind of emotion, information, amazing people, and discovery. There is so much from this conference that I hope to share with all of you, so here's a table of contents:


Zebras: the people

The food!

Diagnosis

EDS

MCAS

POTS

Fatigue

Managing chronic pain

GI symptoms

Psychology

Patient/physician relationship and experience


Or, don't take my word for it! Check out the specialists' slides for yourself here.


There were also two beautiful performances. The first was written and sung at the conference by kids with EDS.



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