• arielaaviva

Ehlers-Danlos Society Conference in Baltimore

(written in August)

Wow, what a week! It's been a whirlwind of emotion, information, amazing people, and discovery. There is so much from this conference that I hope to share with all of you, so here's a table of contents:

Zebras: the people

The food!






Managing chronic pain

GI symptoms


Patient/physician relationship and experience

Or, don't take my word for it! Check out the specialists' slides for yourself here.

There were also two beautiful performances. The first was written and sung at the conference by kids with EDS.

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