I recently wrote a piece for Mighty Well about Independence Day. In it, I wondered how to celebrate “independence” when it seems that...

First of all, anyone who bristles at the word “privilege” -- you’re not alone! I had a really tough time understanding different types...

Jon Rodis, an activist with Marfan Syndrome, presented at the EDS conference in Baltimore about the challenges of getting on disability....

**Note: more detailed stories from this year's Spoonie Retreat will come as soon as I have the time, energy, and head space. But for...

The Ehlers-Danlos Society is trying to address this issue. They recently created this toolbox that I recommend you check out! At the...

I described a lot of types of pain in my last post. I’ve been thinking lately about how attitude can impact our perception of pain. Take...

I wrote last year that I don't do typical New Years resolutions, but rather use it as a chance to reflect on who I've been and who I'd...

Happy December everyone! As I mentioned previously, November sucks. But a friend challenged me to turn it into a month of gratitude, and...

I will (hopefully soon) be sharing a "tips and tricks" post about living with chronic illness, in which I've written that making lists...

I was talking to someone last week who has a young son. She said it’s difficult to find anything else to talk about, because he’s such a...

*Serious CW for sexual violence and overall distress over the state of the world* Two years ago, I was driving to my friend’s house. I...

We wanted to go for a hike today. I LOVE hikes, and they are currently the only way for me to get any cardio. I can move slowly, being...

I recently read Surviving and Thriving With Invisible Chronic Invisible Illness by Ilana Jacqueline. It's a great (and easy) read, and I...

I recently had a pleasant conversation with someone about CBD oil that quickly escalated into an ugly debate. The reason? I was still...

Finding a comfortable label in today's queer alphabet soup Having just written a piece coming out about body image issues, and it being...

Surrendering to doctor-approved weight gain after years of a strained relationship with food **Note: this post is about my struggles...

Sometimes I reread what I've written and think "why would anyone read something this long and complicated? It's exhausting." I then try...

I never realized how much loss is involved in being sick I wrote last month about the documentary Unrest. If you still haven't seen it,...

**CW: reassignment surgery, miscarriage and complex fertility complications I was humbled yet again by the people who reached out to me...

How to choose which topics I'm comfortable going public with (or not) Hi world! Sometimes it feels exciting to be reaching so many...