arielaavivaNov 23, 20191 minNotes for new zebrasI've written enough emails to the newly diagnosed (or self-suspecting, soon-to-be diagnosed), that I decided I should post the info here!...
arielaavivaJul 28, 20199 minPrivilege and Intersectionality as a PatientFirst of all, anyone who bristles at the word “privilege” -- you’re not alone! I had a really tough time understanding different types...
arielaavivaJul 26, 20194 minManaging MedicationsIt’s a cruel irony to have a million medications to manage… all within deep brain fog. Complex illnesses require so much to keep track...
arielaavivaMar 31, 20193 minIf only it were just the fluJon Rodis, an activist with Marfan Syndrome, presented at the EDS conference in Baltimore about the challenges of getting on disability....