Because your GI tract is made primarily from connective tissue, EDS can cause a number of GI symptoms. Dr. Qassim Aziz's talk on GI...

The people of Ehlers-Danlos Society's conference in Baltimore I was curious, when arriving at the EDS Society's conference this summer,...

As Dr. Francomano and Dr. Maitland stated in their talks, fatigue for EDS/MCAS patients can be profound (which is part of why I think all...

I was very anxious going into this conference. Work conferences have never ended well. Usually I feel terrible the whole time and the...

Every time I have to see a doctor, I get a wave of 1,000 emotions. I'm nervous they won't give me enough time to explain myself, anxious...

Speakers on this topic seemed hesitant and careful about how they presented. The vast majority of us patients have been told that we...

(In case you need a song to listen to while you read this -- Funeral by Phoebe Bridgers sounds like Novembers feel. Enjoy :-) Novembers...

I will (hopefully soon) be sharing a "tips and tricks" post about living with chronic illness, in which I've written that making lists...

I was talking to someone last week who has a young son. She said it’s difficult to find anything else to talk about, because he’s such a...

A User's Guide The number of diets suggested to me in the last 20 years is astounding. I've tried dairy-free, gluten-free, high-fiber,...

I have to say, of all my recipes, I think I'm most proud of this one! I've combine aspects of different recipes, made adjustments for my...

As long as I can remember, I'd wake up at 3 am with my head spinning, unable to fall back asleep. Some nights I'd have so much trouble...

*Serious CW for sexual violence and overall distress over the state of the world* Two years ago, I was driving to my friend’s house. I...

We wanted to go for a hike today. I LOVE hikes, and they are currently the only way for me to get any cardio. I can move slowly, being...

I recently read Surviving and Thriving With Invisible Chronic Invisible Illness by Ilana Jacqueline. It's a great (and easy) read, and I...

An incomplete picture that can exacerbate the misdiagnosis/undiagnosed trend A few years ago, my mom was reading medical journals and...

I recently had a pleasant conversation with someone about CBD oil that quickly escalated into an ugly debate. The reason? I was still...

Surrendering to doctor-approved weight gain after years of a strained relationship with food **Note: this post is about my struggles...

When I asked spoonies about their relationships with food, many of us cited it as a strain on our social lives. I once watched a...

When food can cause so much damage, it's tough to enjoy eating My parents always joked that my dad eats to live and my mom lives to eat. ...