I used to get boxes of 48 granola bars at Costco, so I'd always have a few available for transporting calories to keep me going. I...

Today, I feel whole. I slept beautifully for 7 hours, then woke up feeling refreshed and ready to go at 6:15. My blood sugar levels...

One of the activities in the Spoonie Collective retreat was to write a letter from your illness to you. Another was to write from you to...

My husband has a complex role to play in my efforts to stay healthy. At times he's a great support, occasionally he pushes me to just...

For background info, check out my first post about the retreat. I journaled frequently throughout the experience, so for this post I've...

The story I shared live at the Spoonie Collective storytelling event in Bristol, VT Some kids’ parents brought home ice cream to eat as a...

Created as part of the Spoonie Collective retreat Dear Ari, There are some things I'd like you to know about me. I am not your enemy, at...

A weekend surrounded by illness that left me feeling incredibly alive (Photo cred: Amanda Crommett) Someone I'd met through an EDS...

How the choice to disclose your condition can be both a blessing and a curse. I recently had an interesting experience. Every few...

Hopefully you've already read part one of this train of thought, Inspiration Porn. Here's where it was going... I started to write about...

I recently came across the term "inspiration porn." My initial reaction was just that it was hilarious, but the more I think about it,...

Tasty, customizable, low-histamine dessert! (and it's even healthy) What's cool about chia pudding is that it's super easy and can be...

**WARNING: not for the squeamish I had an incredible weekend. I had the house to myself, got plenty of alone time, got tons of work...

I think I have wanted to be a teacher since middle school. I love learning new things, I love talking about them with others, and I get...

The new fad in my demographic seems to be a quest for wellness. I could get into how things such as culture and income affect people's...

Finding meaning in daily interactions I was talking to my sister about potentially working as a school nurse. She mentioned she wasn't...

The incredible thrill of a doctor who is kind, inquisitive, understands MCAS, and isn't afraid to admit what he doesn't know **Note: The...

A quick snapshot of chronic illness struggles. **Not for squeamish readers I’m sitting alone in my living room, finishing up the TV show...

Chronic illness affects all aspects of life, even the small things like leaving the house. When others can't "see" that you're sick,...

Why I wish it was vomit. Some of you may be put off by my openness about some of the symptoms in this blog. Diarrhea is gross, and no...