arielaaviva
Surprisingly easy homemade granola bars!
I used to get boxes of 48 granola bars at Costco, so I'd always have a few available for transporting calories to keep me going. I...
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arielaaviva
Mar 10, 20182 min read
Today is a good day
Today, I feel whole. I slept beautifully for 7 hours, then woke up feeling refreshed and ready to go at 6:15. My blood sugar levels...
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arielaaviva
Mar 5, 20181 min read
Letter to your illness
One of the activities in the Spoonie Collective retreat was to write a letter from your illness to you. Another was to write from you to...
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arielaaviva
Mar 4, 20186 min read
Twelve Months of Fatigue
My husband has a complex role to play in my efforts to stay healthy. At times he's a great support, occasionally he pushes me to just...
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arielaaviva
Mar 4, 201812 min read
Spoonie Collective: Part 2
For background info, check out my first post about the retreat. I journaled frequently throughout the experience, so for this post I've...
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arielaaviva
Mar 4, 20183 min read
Adapting to the new normal
The story I shared live at the Spoonie Collective storytelling event in Bristol, VT Some kids’ parents brought home ice cream to eat as a...
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arielaaviva
Mar 4, 20182 min read
Letter from my illness to me
Created as part of the Spoonie Collective retreat Dear Ari, There are some things I'd like you to know about me. I am not your enemy, at...
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arielaaviva
Mar 4, 20184 min read
The Spoonie Collective Retreat
A weekend surrounded by illness that left me feeling incredibly alive (Photo cred: Amanda Crommett) Someone I'd met through an EDS...
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arielaaviva
Feb 10, 20187 min read
Why "invisible" illness?
How the choice to disclose your condition can be both a blessing and a curse. I recently had an interesting experience. Every few...
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arielaaviva
Feb 9, 20184 min read
Depression isn't sexy
Hopefully you've already read part one of this train of thought, Inspiration Porn. Here's where it was going... I started to write about...
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arielaaviva
Feb 9, 20183 min read
Inspiration Porn
I recently came across the term "inspiration porn." My initial reaction was just that it was hilarious, but the more I think about it,...
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arielaaviva
Feb 3, 20182 min read
Chia Pudding
Tasty, customizable, low-histamine dessert! (and it's even healthy) What's cool about chia pudding is that it's super easy and can be...
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arielaaviva
Feb 1, 20186 min read
Balancing act: what deserves a sick day?
**WARNING: not for the squeamish I had an incredible weekend. I had the house to myself, got plenty of alone time, got tons of work...
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arielaaviva
Feb 1, 20184 min read
To work or not to work -- what am I capable of?
I think I have wanted to be a teacher since middle school. I love learning new things, I love talking about them with others, and I get...
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arielaaviva
Feb 1, 20184 min read
Balancing act: wellness vs. health
The new fad in my demographic seems to be a quest for wellness. I could get into how things such as culture and income affect people's...
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arielaaviva
Jan 31, 20183 min read
The Impact You Can Make
Finding meaning in daily interactions I was talking to my sister about potentially working as a school nurse. She mentioned she wasn't...
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arielaaviva
Jan 21, 201810 min read
Meeting Dr. Afrin
The incredible thrill of a doctor who is kind, inquisitive, understands MCAS, and isn't afraid to admit what he doesn't know **Note: The...
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arielaaviva
Jan 21, 20185 min read
Just Another Wednesday Night...
A quick snapshot of chronic illness struggles. **Not for squeamish readers I’m sitting alone in my living room, finishing up the TV show...
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arielaaviva
Jan 6, 20185 min read
Reasons My Friends Think I'm Slow and Boring
Chronic illness affects all aspects of life, even the small things like leaving the house. When others can't "see" that you're sick,...
95 views
arielaaviva
Jan 5, 20184 min read
On symptoms and shame
Why I wish it was vomit. Some of you may be put off by my openness about some of the symptoms in this blog. Diarrhea is gross, and no...
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