arielaavivaMar 12, 20187 minSurviving Disney WorldThe tricks, preparations, and small miracles that kept me going in the happiest (and most exhausting) place on Earth I recently had the...
arielaavivaMar 11, 20182 minSurprisingly easy homemade granola bars!I used to get boxes of 48 granola bars at Costco, so I'd always have a few available for transporting calories to keep me going. I...
arielaavivaMar 10, 20182 minToday is a good dayToday, I feel whole. I slept beautifully for 7 hours, then woke up feeling refreshed and ready to go at 6:15. My blood sugar levels...
arielaavivaMar 5, 20181 minLetter to your illnessOne of the activities in the Spoonie Collective retreat was to write a letter from your illness to you. Another was to write from you to...
arielaavivaMar 4, 20186 minTwelve Months of FatigueMy husband has a complex role to play in my efforts to stay healthy. At times he's a great support, occasionally he pushes me to just...
arielaavivaMar 4, 201812 minSpoonie Collective: Part 2For background info, check out my first post about the retreat. I journaled frequently throughout the experience, so for this post I've...
arielaavivaMar 4, 20183 minAdapting to the new normalThe story I shared live at the Spoonie Collective storytelling event in Bristol, VT Some kids’ parents brought home ice cream to eat as a...
arielaavivaMar 4, 20182 minLetter from my illness to meCreated as part of the Spoonie Collective retreat Dear Ari, There are some things I'd like you to know about me. I am not your enemy, at...
arielaavivaMar 4, 20184 minThe Spoonie Collective RetreatA weekend surrounded by illness that left me feeling incredibly alive (Photo cred: Amanda Crommett) Someone I'd met through an EDS...