arielaaviva
The trouble with exercising is...
Unforeseen challenges in keeping up with my EDS exercises I wrote my last post about the EDS exercises that have vastly improved my...
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arielaaviva
Jun 8, 20185 min read
The Muldowney Protocol
The exercises that have saved my joints. Last January, after getting my official diagnosis from a geneticist in Baltimore, I was referred...
126 views
arielaaviva
May 27, 20181 min read
Meta-post: length and complexity
Sometimes I reread what I've written and think "why would anyone read something this long and complicated? It's exhausting." I then try...
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arielaaviva
May 25, 20184 min read
Remembering what normal is
What a great day! I'm on cloud nine, floating around the house with a big grin on my face. I've just broken a week-long streak of...
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arielaaviva
May 17, 20183 min read
Welcoming Grief
I never realized how much loss is involved in being sick I wrote last month about the documentary Unrest. If you still haven't seen it,...
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arielaaviva
Apr 28, 20183 min read
Meta-post: to share or not to share?
How to choose which topics I'm comfortable going public with (or not) Hi world! Sometimes it feels exciting to be reaching so many...
30 views
arielaaviva
Apr 28, 20185 min read
Things I wish I'd learned in sex ed
The funny thing about my high school sex education is that I sat next to my now husband and one of his best friends. Incidentally, I...
90 views
arielaaviva
Apr 28, 20184 min read
Breaking the silence
Why it can be so difficult to talk about infertility (I highly recommend you read this person's story, which outlines my thoughts +...
27 views
arielaaviva
Apr 26, 20188 min read
Fear of future loss
My journey with abnormal hormones and the fear of infertility it created CW: infertility, body shame, doctor disbelief I didn't get my...
88 views
arielaaviva
Apr 25, 20182 min read
Infertility Awareness Week
Infertility is a massive topic, and one that unfortunately hits close to home. It's been on my list of topics to write about, but keeps...
183 views
arielaaviva
Apr 23, 20182 min read
What's the deal with the spoons?
I've mentioned spoons, spoonies, and spoony culture throughout my posts, so if you're wondering what I'm talking about... The Spoon...
19 views
arielaaviva
Apr 22, 20183 min read
Seeing aliens everywhere
Diagnosing people in my head, and how to talk to them about it (or not) I remember a book series from when I was a kid. The protagonists...
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arielaaviva
Apr 22, 20182 min read
Meta-post: how to blog through frain bog
Ture story -- the title of this post was supposed to be "how to blog through brain fog" but I happen to be experiencing mild brain fog...
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arielaaviva
Apr 20, 20185 min read
What Happens in Vagus
"Your brain thinks you're being decapitated from the inside" About a year ago, I discovered Kathleen Muldowney -- a physical therapist in...
37 views
arielaaviva
Apr 18, 20183 min read
Nourishing the soul
Keeping Kosher on a diet (or not) When people find out I'm Jewish, they usually look awkwardly at my blond hair and blue eyes, and then...
15 views
arielaaviva
Apr 17, 20182 min read
Language Matters
Someone brought up at the Spoonie Collective that we had used interesting language. We chose phrases like “struggling with” or “living...
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arielaaviva
Apr 5, 20182 min read
Sit and be with me in silence
Bearing witness as a form of action People often ask what they can do to help me. Sometimes I have an answer -- help me cook dinner when...
38 views
arielaaviva
Apr 5, 20188 min read
Seeing both sides of the coin
Content warning: this story contains excitement over color and consistency of poop. If you find that disgusting or disturbing, I hope...
144 views
arielaaviva
Mar 22, 20183 min read
What if it's all a ruse?
Second-guessing my own body's need for rest It's becoming very familiar -- I went to work, grabbed lunch with a friend, and by 2:00 felt...
26 views
arielaaviva
Mar 12, 20187 min read
Surviving Disney World
The tricks, preparations, and small miracles that kept me going in the happiest (and most exhausting) place on Earth I recently had the...
43 views
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