Unforeseen challenges in keeping up with my EDS exercises I wrote my last post about the EDS exercises that have vastly improved my...

The exercises that have saved my joints. Last January, after getting my official diagnosis from a geneticist in Baltimore, I was referred...

Sometimes I reread what I've written and think "why would anyone read something this long and complicated? It's exhausting." I then try...

What a great day! I'm on cloud nine, floating around the house with a big grin on my face. I've just broken a week-long streak of...

I never realized how much loss is involved in being sick I wrote last month about the documentary Unrest. If you still haven't seen it,...

How to choose which topics I'm comfortable going public with (or not) Hi world! Sometimes it feels exciting to be reaching so many...

The funny thing about my high school sex education is that I sat next to my now husband and one of his best friends. Incidentally, I...

Why it can be so difficult to talk about infertility (I highly recommend you read this person's story, which outlines my thoughts +...

My journey with abnormal hormones and the fear of infertility it created CW: infertility, body shame, doctor disbelief I didn't get my...

Infertility is a massive topic, and one that unfortunately hits close to home. It's been on my list of topics to write about, but keeps...

I've mentioned spoons, spoonies, and spoony culture throughout my posts, so if you're wondering what I'm talking about... The Spoon...

Diagnosing people in my head, and how to talk to them about it (or not) I remember a book series from when I was a kid. The protagonists...

Ture story -- the title of this post was supposed to be "how to blog through brain fog" but I happen to be experiencing mild brain fog...

"Your brain thinks you're being decapitated from the inside" About a year ago, I discovered Kathleen Muldowney -- a physical therapist in...

Keeping Kosher on a diet (or not) When people find out I'm Jewish, they usually look awkwardly at my blond hair and blue eyes, and then...

Someone brought up at the Spoonie Collective that we had used interesting language. We chose phrases like “struggling with” or “living...

Bearing witness as a form of action People often ask what they can do to help me. Sometimes I have an answer -- help me cook dinner when...

Content warning: this story contains excitement over color and consistency of poop. If you find that disgusting or disturbing, I hope...

Second-guessing my own body's need for rest It's becoming very familiar -- I went to work, grabbed lunch with a friend, and by 2:00 felt...

The tricks, preparations, and small miracles that kept me going in the happiest (and most exhausting) place on Earth I recently had the...